Sully had surgery yesterday. You remember Sully, I told you about him last month. The surgery was over ten hours in duration and was performed by the renowned neurosurgeon Dr. Ben Carson at John Hopkins in Baltimore. Sully was born with hemimegalencephaly, a rare brain disorder which causes severe developmental delays and progressive seizure activity. It was determined that Sully's seizure activity has become so severe that his quality of life was greatly diminished when they reached 25 to 30 seizures per day. Sully's parents had been medically advised all along that this was his prognosis and without this surgery, Sully would have a minimal quality of life and would live it in severe discomfort and pain.
The tremendously remarkable thing is that these loving parents made the gut wrenching choice, a giant leap of faith to go ahead and do what many of us as parents simply could not do, and give the go ahead to the surgery.
Sully has had part of each of the four quadrants of his brain removed. He will need to be still, with his head turned right for at least 48 hours so that his skull cavity can refill with cerebral fluid. He is partially paralyzed on the right side, which is a normal side effect of this surgery and will diminish over time. In fact, his parents saw his right leg move slightly today. Sully is heavily sedated and recovering in the Pediatric Intensive Care Unit (PICU) with a full time RN assigned to him 24/7. His parents report that he is receiving unbelievable care. I have posted a pic below that was taken this morning in PICU by Sully's dad. Put your hands together and give thanks for this successful surgery & send along good thoughts wishing Sully a speedy recovery.
God is good and Sully is beautiful!